Gordon Eadie, stalwart of Musselburgh Running Club, and well known face to all of us is celebrating his 50th birthday this April by running the London Marathon.
On the 19th April this year I will be 50. The week after I intend to run the London Marathon in aid of Fanconi Hope.
Many of you will already know Bob & Jeannie Dalgleish and their daughter Louise, who has a rare condition known as Fanconi Anaemia. Fanconi Anaemia is a rare genetic disorder mainly affecting children.
The Fanconi Hope Charity is a national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-
- To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
- To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
- To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
- To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, e.g., in the treatment of cancers in general.
Many thanks for your support.